Story of Caring
Meet three year-old Taylor, a brave fighter who loves to dance, and dreams of becoming a ballerina. But, Taylor's path in life will not be easy. She has cystic fibrosis (CF), a life threatening genetic disease that affects the lungs and digestive system. Even simple things like running and washing hands take on new meaning. She must maintain a strict regimen to sustain her health.
Taylor’s family administers rigorous daily respiratory therapy to clear her airways and restore her ability to breathe effectively. She swallows dozens of pills each day so that she can digest her food properly and maintain her weight.
Gift of Caring
The
Cystic Fibrosis Foundation funds research that develops the medications that Taylor and thousands of others must take each day to stay alive. With only 30,000 people having CF in the United States, pharmaceutical companies will not fund research without the support funding from the CF Foundation.
One day, they will find a cure! And it's all because of gifts from people just like you.
Eric Frisbee Photography gives all proceeds from your purchases to the CF Foundation.
You can make a
direct donation to support the mission of the Cystic Fibrosis Foundation.
Adding Tomorrows Every Day
Meet Taylor's sister, 5 month-old Isabella. Like Taylor, Isabella too has CF. Isabella's young life has already been a struggle with two infections of Pseudomonas aeruginosa, each requiring long doses of the potent antibiotic Cipro. The lungs of CF patients are chronically infected for years by Pseudomonas aeruginosa. With Taylor's and Isabella's life long ally, the CF Foundation, the sisters have a better opportunity to maintain a good quality of life, and hopefully a cure.
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Foundation is one of the most efficient organizations of its kind. In 2006, nearly 90% of every dollar of revenue raised was available for investment in CF research, care and education programs. The National Institutes of Health and many prominent publications, including
Forbes and
USAToday, have heralded their innovative business model, which fuels drug discovery and development programs.
When the Foundation was established in 1955, children with CF were not expected to live long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, the predicted median survival age for people with this disease is now 37 years.
In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis—a monumental breakthrough on the road to a cure.
The Foundation has played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting nearly 30
potential new treatments currently in development—that's more than in the entire history of the disease. Their challenge is to find enough patients to join clinical trials to keep the research moving forward.
Learn more about
cystic fibrosis and how you can
get involved.
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